Aim
To qualitatively explore the experiences of individuals with Gestational Diabetes Mellitus (GDM) in Australia, and to recognise opportunities for leveraging digital health to enhance the support of GDM management.
Method
A cross-sectional online survey assessed experiences of individuals with GDM, the healthcare system, and their digital health usage. Respondents (recruited via a national diabetes registry or social media) were adults receiving GDM care within Australia in the last 5 years, who responded to any of three open-ended questions (n=815) exploring positive, negative, and other GDM experiences. Thematic analysis was utilised, and themes mapped to the socio-ecological systems framework.
Results
At a system level, themes related to 1) accessibility of care including the value of digital health and the inflexible or inconsistent perception of the 2) implementation of guidelines. At an interpersonal level, themes covered the need for adequate 3) health information provision, and 4) supportive care, as well as highlighting 5) experiences of stigma including a desire for greater awareness of GDM. Individual level themes included: 6) differential barriers to accessing care; 7) negative emotional burden; 8) internalisation of stigma; 9) dietary freedom and social impact, and 10) opportunity for change derived from having GDM.
Conclusion
Findings suggest demand for more supportive, person-centred GDM care, improved information provision and individualised implementation of clinical guidelines. Such mechanisms may support reduced barriers to accessing care or negative psychosocial impacts of GDM. Though not central to the identified experiences, digital health tools may help address the need for optimised GDM care.